Fall is here and winter is just around the corner. I hope you had a great and prosperous summer and now with fall here, I hope things are beginning to slow down for us all. We had a busy summer and it was great.  Duane and his fiance' Jessica visited with us for 3 weeks and our older son Christopher came for a week to be with us and his brother. 

When Duane first arrived, he needed help with support to walk through the airport, Jess was feeling nausea, the landing of the plane was not very respectable by all means and she looked a bit green. Poor thing I can relate, I hate to fly. Duane had what I call "the lizard tongue" episode the first night home and it lasted over an hour. He had to go to bed due to a sever headache followed the attack. He couldn't speak to us but gave us hand gestures saying things were okay. I was very sadden to see our son go through this misery.

He had a total of 4 of those episodes while he was here. I do believe he had several seizures during the first part of his vacation. I did not witness them,  Jess said that he had them early in the morning. However, his balance was way off and I held hands with him as he walked anywhere until he felt that the cane could support his weight. He ate very little. But I noticed after a few days that his appetite increased as more time went by. I was thrilled to cook for him and see his hunger increase. I watched what I would provide for food, I didn't want to feed my family junk even if we had our son's here on vacation, we have a tendency to splurge. Not this time though. Fruits and vegetables and some meats.

Having our son's here together was a joyful time for us. We love them so very much. And to have a new daughter in law in the near future is a added bonus. She is a wonderful, caring and lovable woman. 

Duane is following in his mothers footsteps with photography. He has some wonderful photographs that I would like to share with you. He donates part of the proceeds to the "Children's Tumor Foundation". If you see an image that you would like, please in the comment area leave us your email address and we will contact you with size and fee. We appreciate this very much. 

Once again we are back to raising funds for the research of NF Disorder. Please read the entry below and click on the face-book address or google Neurofibromatosis, Inc. (go to advocacy to follow the instructions to write to your representatives and senators. They have a letter already for you to print out,  just fill in the blanks for your signature and who your addressing the letters too. I have sent our letters and I hope you will too.

Neurofibromatosis, Inc. The $20 million dollar request for the Army's NF Research Program is now in 

conference. Your help is needed to make this NF Research funding a reality. Please visit NF, Inc. Network to inform your Representatives of the importance of federally funded NF Research, urging them to make neurofibromatosis research a nationa...

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http://www.facebook.com/l/e3a99CTM55azk__PYPDXBCHKFow;nfnetwork.org/ge

These 8 x 10 photographs by Duane Marshall, $15.00 each.

There is nothing more important then family!

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