The web site above shows a couple of photographs of patients with caf-au-lait spots along with small nodules.
Our Son and Grandson have these markings, I wanted to show you some of the clinical symptoms.
Duane will be having some of the fibromas removed January 31, 2012. Some of the nodules can grow very large, and are extremely painful even at the touch. Click on the site address above and scroll down to the photographs.
Support Group For NF.
If you are interested in joining a support group for NF, listed is a site that I just registered with today. This has families with loved ones that have NF.
http://www.inspire.com/groups/neurofibromatosis-inc/
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