Posted in News
Do you have a child or know a child with NF who is struggling? Who is undergoing chemotherapy? Who is about to go through a tough medical procedure or surgery? Or maybe you know a child who just needs some extra TLC.
NF, Inc. is now offering care packages to give these children a lift. Thirteen year old Elana has been through surgery and knows how they feel. She would like to send your child a care package (at her expense) to bring joy to a child with NF. If you would like to have a care package sent to a child who could use a lift, please contact Elana. Her email is listed below. htowngirl6y@gmail.com.
She will ask some questions so she will be able to customize the package for 5-14 year olds. All information will be kept confidential. Elana loves to chat with other children who have NF. Please remember when emailing Elana that she is not a healthcare professional.
htowngirl6y@gmail.com.
This information is from the “NFNETWORK.ORG” site.
Local Groups
Neurofibromatosis, Inc. – Arizona
NF Arizona Website PO Box 2718 Chandler, AZ 85244 480.945.9650 email
Neurofibromatosis, Inc. – California
NF California Website P.O. Box 1234 Vacaville, CA 95696 707.469.0467 email
Neurofibromatosis, Inc. – Illinois/Midwest
NF Illinois / Midwest Website 473 Dunham Rd., Suite 3 St. Charles, IL 60174 630.945.3562 or 1.800.322.NFNF (In Illinois only) email
Neurofibromatosis, Inc. – Kansas & Central Plains
NF Kansas / Central Plains Website 1731 Pine Grove Court Derby, KS 67037-3950 316.295.3332 email
Neurofibromatosis, Inc. – Michigan
NF Michigan Website a.k.a. NF Support Group of West Michigan P.O. Box 6026 Grand Rapids, MI 49516-6026 616.451.3699 email
Neurofibromatosis, Inc. – Mid-Atlantic
NF Mid-Atlantic Website 3600 Clipper Mill Road, #240 Baltimore, MD 21211 443.423.0535 email Serving: Maryland, Virginia, District of Columbia, Delaware, New Jersey, Pennsylvania, West Virginia, and North Carolina.
Neurofibromatosis, Inc. – Minnesota
NF Minnesota Website PO Box 18246 Minneapolis, MN 55418 651.225.1720 email
Neurofibromatosis, Inc. – Northeast
NF New England / Northeast Website 9 Bedford Street Burlington, MA 01803 781.272.9936 email
Serving Connecticut, Massachusetts, Maine, New Hampshire, New York, Vermont, and Rhode Island
Neurofibromatosis, Inc. – Southeast
P.O. Box 66884 Chicago, IL 60666 404.671.9505
Washington State Neurofibromatosis Families
Washington State Neurofibromatosis Families Website 22835 129th Ave SE Kent, WA 98031 425.672.9610 email
FIND A DOCTOR
NF, Inc. has compiled a listing of medical facilities that have personnel on staff with experience in dealing with Neurofibromatosis. Some facilities have established NF Clinics; others have resources available to address the needs of NF patients and families.
Children's Tumor Foundation has a list of Doctors and medical facilities as well.
www.ctf.org/Living-with-NF/find-a-doctor.html
For international:
www.ctf.org/Living-with-NF/international-doctors.html
As part of NF Awareness month, celebrity doodles are available for auction on eBay during May.
These doodles have a very important aim: the funds they raise will benefit NF, Inc., an organization dedicated to providing support to individuals and families affected by neurofibromatosis (NF).
Neurofibromatosis is a genetic disorder that affects one in every 2,500 births. NF is more common than Cystic Fibrosis, Muscular Dystrophy and Huntington's Disease combined. Funds raised from the Doodle Day auction will go to support education, advocacy, coalitions, and research for treatments and a cure.
To learn more about NF, please visit www.nfinc.org. For more information about National Doodle Day, email doodleday@nfnetwork.org
www.doodledayusa.org/index.php
"INSPIRE"
About this community,
The Neurofibromatosis, Inc. Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by Neurofibromatosis, Inc., an Inspire trusted partner.
Neurofibromatosis, Inc. Support Community
